Immune Deficiencies Foundation Of New Zealand (IDFNZ) Incorporated — Health Charity in Wellington
Immune Deficiencies Foundation Of New Zealand (IDFNZ) Incorporated is a Trust charity in the Health sector, based in Wellington, Wellington. This organisation also provides funding to other charities. CharityData rates this charity B (79.5/100). Annual revenue: $0.9M NZD. Financial data as at March 2025.
Mission: Established in 1989 IDFNZ KIDS Foundation exists to support patients of all ages (and families) affected by rare genetic conditions of the immune system and other rare medical conditions - including more recently paediatric liver disease and intestinal failure child patients. Primary Immune Deficiency (PID) child patients may require bone marrow or thymus transplant; PID patients of all ages may require lifelong plasma therapies to strengthen their immune response. Children with liver disease / intestinal failure are also high medical needs and may require transplant. All patient members are vulnerable and medically fragile. In addition IDFNZ KIDS Foundation supports medical research relating to PID/Liver disease and promoting education of the early warning signs to medical professionals and the general public. Early diagnosis is proven to support better outcomes and quality of life for patients.
- Registration Number
- CC24570
- Charity Type
- Trust
- Registration Date
- 2008-05-19
- Status
- Active
- CharityData Rating
- B (79.5/100)
- Sector
- Health
- Location
- Wellington, Wellington
- Website
- http://www.idfnz.org.nz
- info@idfnz.org.nz
- Funder Status
- Grant-making charity (foundation)
- Data as at
- March 2025
Financial Summary
- Total Revenue
- $0.9M NZD
- Total Expenses
- $0.9M NZD
- Total Assets
- $2.3M NZD
- Net Assets
- $1.9M NZD
- Reserve Months
- 0.0 months of operating expenses
- Staff Count
- 3
- Volunteers
- 2
- Financial Year End
- 2025-03-31
Financial History
| Year | Revenue | Expenses | Net Assets |
|---|---|---|---|
| 2025 | $0.9M | $0.9M | $1.9M |
| 2024 | $1.1M | $0.9M | $1.9M |
| 2023 | $1.1M | $0.9M | $1.8M |
| 2022 | $0.9M | $0.8M | $1.6M |
| 2021 | $0.9M | $0.8M | $1.5M |
| 2020 | $1.1M | $1.0M | $1.4M |
| 2019 | $0.9M | $1.0M | $1.2M |
| 2018 | $0.9M | $0.9M | $1.3M |
| 2017 | $0.9M | $1.0M | $1.2M |
| 2016 | $0.9M | $0.9M | $1.3M |
CharityData Rating
- Overall Grade
- B
- Overall Score
- 79.5/100
- Financial Score
- 90
- Governance Score
- 55
- Transparency Score
- 65
Board Members and Officers
Current Officers (0)
| Name | Role | Appointed |
|---|
Former Officers (25)
- George Metson — Trustee (departed 2025-03-22)
- Harriet Alexander — Trustee
- Sean Bridge — Trustee (departed 2024-12-12)
- Dr Annaliesse Blincoe — Trustee
- Caroline Saunders — Trustee (departed 2024-09-26)
- Julian Ng — Trustee
- Michele Kay-Sharman — Trustee (departed 2022-09-29)
- Anita Jasuja — Trustee (departed 2019-11-28)
- Kahn Preece — Medical Panel (departed 2016-10-25)
- Rochelle Watson — Trustee (departed 2017-03-22)
- Miriam Hurst — Trustee (departed 2023-06-29)
- Adriaan Bosch — Trustee (departed 2023-09-28)
- Samantha Sutherland — Trustee (departed 2013-10-19)
- Katy Brown — Trustee (departed 2018-02-13)
- Nick Metson — Trustee (departed 2022-09-29)
- Shannon Brothers — Trustee (departed 2015-10-17)
- Jan Sinclair — Trustee (departed 2008-08-09)
- Rohan Ameratunga — Board Member/vice Chair (departed 2010-10-30)
- Stephen Baxter — Chair (departed 2010-07-23)
- Laura Hannah — Trustee (departed 2024-09-26)
Funding Sources
- Aotearoa Gaming Foundation — $34,270
- Pelorus Trust — $20,000
- Milestone Foundation Limited — $19,235
- Pub Charity Limited — $14,000
- Pelorus Trust — $9,000
- Trillian Trust — $7,977
- Milestone Foundation — $5,470
- The North and South Trust Limited — $5,350
- One Foundation — $5,140
- The Trusts Community Foundation — $4,500
- Dragon Community Trust — $3,500
- Blue Sky Community Trust — $2,000
- The Trusts Community Foundation — $2,000
- The Lion Foundation — $2,000
- Dragon Community Trust — $1,695
Similar Charities in Health
- Kimi Hauora Wairau Marlborough PHO Trust — Health
- Te Runanga O Ngati Rehia Trust — Health
- Counselling Services Centre — Health
- Man Alive Charitable Trust — Health
- The South Seas Health Care Trust — Health
Immune Deficiencies Foundation Of New Zealand (IDFNZ) Incorporated
CC24570Wellington, WellingtonRegistered 19 May 2008
Data updated: 2 days ago
Financials31 Mar 2025Rating4d ago
Financial data as at March 2025. Sourced from Charities Services register.
B
80/100
Financial
90
Governance
55
Transparency
65
Reasons to look carefully (1)
These structural observations are drawn from public data and are worth considering before a donation. They are not allegations of wrongdoing, and they don’t affect the charity’s letter grade.
- Small board structure1 current officer listed on the register — best-practice boards have 5+ members with separation of duties
Each signal is a data-driven observation, not a judgement. They fire automatically from the figures filed with Charities Services. A charity can address any of these by filing fuller disclosure or updating its officer register.
Revenue
$931.1K
Expenses
$948.0K
Assets
$2.3M
Staff
3
Financial data from Charities Services annual return (FY2025). Ratings calculated using CharityData v3.1.1 methodology.
Endowment Foundation
Special Entity TypeThis is an endowment foundation that holds investments and provides grants. High reserves are expected and appropriate - this is not an operating charity.
Rating Note: Endowment foundations are rated using specialized criteria that recognize high reserves as appropriate. Metrics like grant distribution rate and investment returns are prioritized over program spending ratios.
Funder Profile
GrantmakerThis organisation makes grants or donations to other charities and organisations.
Funding Sectors
HealthEducation
Beneficiaries
ChildrenGeneral Public
Geographic Focus
Wellington
About
Mission
Established in 1989 IDFNZ KIDS Foundation exists to support patients of all ages (and families) affected by rare genetic conditions of the immune system and other rare medical conditions - including more recently paediatric liver disease and intestinal failure child patients. Primary Immune Deficiency (PID) child patients may require bone marrow or thymus transplant; PID patients of all ages may require lifelong plasma therapies to strengthen their immune response. Children with liver disease / intestinal failure are also high medical needs and may require transplant. All patient members are vulnerable and medically fragile. In addition IDFNZ KIDS Foundation supports medical research relating to PID/Liver disease and promoting education of the early warning signs to medical professionals and the general public. Early diagnosis is proven to support better outcomes and quality of life for patients.
Key Statistics
Annual Revenue
$931.1K
Total Expenses
$948.0K
Net Assets
$1.9M
Staff
3
employees
Volunteers
2
Financial Trends
Financial Trends (17 Years)
Revenue Breakdown
Expense Breakdown
API DataBased on annual return data. Detailed program/admin breakdown not available.
Financial Health Dashboard
Cents to the Cause
100c
For every $1 spent, 100c reaches programs
Strong
Sustainability
0mo
Could operate 0 months with zero revenue
Critical
Fundraising Cost
-
No fundraising data
No data
Based on latest annual return data. Metrics are calculated from reported financial data and may not reflect the full picture. View methodology
Revenue Diversification
37
Score /100
Concentrated
HHI: 6,349
Donations78.2%
Investment Income11.8%
Other9.7%
Trading / Services0.3%
HHI (Herfindahl–Hirschman Index) measures concentration across 6 income categories. Lower HHI = more diversified. Score above 60 indicates healthy diversification.
Peer Comparison
Ranked against 173 peers · Health · $100K – $1M
Rating Score
80
Revenue
$931K
Reserve Months
0.0
Surplus
$-17K
Staff Cost %
21%
Top Peers in Group
Peers are charities in the same sector and revenue size band. Rankings are based on the latest available data.
Rating
BScore: 79.5/100
Financial
90
Governance
55
Transparency
65
Why this grade: Financial 90 × 40% + Governance 55 × 60% = 69 → B.
Is this your charity?
Claim your profile to view analytics, submit corrections, and improve your rating.
Claim This ProfileContact Details
Registration
Registration NumberCC24570
Entity TypeTrust
Registered19 May 2008
StatusRegistered
Companies Office
StatusRegistered
Entity TypeIncorporated Society
Incorporated28 Feb 1989
Registered office
55i Druces Road, Wiri, Auckland, 2104
Differs from Charities Register address (C/- Duncan Cotterill, Level 2, Bayleys Building, Tower Building, 50 Customhouse Quay, Wellington, 6011, Wellington, Wellington). May be stale on either register — verify with the charity if material.
Sector & Activities
Primary Sector
HealthData sourced from Charities Services register and publicly available annual returns. Our datasets may not be complete. Automated analysis can produce errors. Scores are calculated using disclosed methodology and are analytical tools, not investment ratings or recommendations. If you believe any data on this page is incorrect, please contact us at hello@charitydata.co.nz. For informational purposes only. Not investment advice. Last updated: 4 May 2026.
Similar Charities in Health
Other Health charities ranked by overall score