Cure ECHS1D Aotearoa Charitable Trust — Health Charity in Richmond
Cure ECHS1D Aotearoa Charitable Trust is a Charitable Trust charity in the Health sector, based in Richmond, Richmond. Annual revenue: $0.1M NZD. Financial data as at March 2025.
Mission: The purpose of the Trust is to promote the prevention or control of diseases caused by ECHS1D deficiency. ECHS1D is an under researched genetic disorder which causes early onset neurodegeneration in babies. The disease is prevalent in Maori and Pacifica people.
- Registration Number
- CC62797
- Charity Type
- Charitable Trust
- Registration Date
- 2024-10-16
- Status
- Active
- Sector
- Health
- Location
- Richmond, Richmond
- mike@propertylawcentre.co.nz
- Data as at
- March 2025
Beneficiaries: People with disabilities
Financial Summary
- Total Revenue
- $0.1M NZD
- Total Expenses
- $0.0M NZD
- Total Assets
- $0.1M NZD
- Reserve Months
- 0.0 months of operating expenses
- Volunteers
- 0
- Financial Year End
- 2025-03-31
Board Members and Officers
Current Officers (5)
| Name | Role | Appointed |
|---|---|---|
| Benjamin Conning | Trustee | 2024-10-15 |
| Bayly Conning | Trustee | 2024-10-15 |
| Simon Conning | Trustee | 2024-10-15 |
| Robin Whalley | Trustee | 2024-10-15 |
| Michael Giblot Ducray | Trustee | 2024-10-15 |
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Cure ECHS1D Aotearoa Charitable Trust
Financial data as at March 2025. Sourced from Charities Services register.
Small volunteer-led organisations are not letter-graded: the standard financial template does not fit entities without paid staff, large revenue, or significant government funding. The charity's filed figures are shown above.
How ratings work →Reasons to look carefully (1)
These structural observations are drawn from public data and are worth considering before a donation. They are not allegations of wrongdoing, and they don’t affect the charity’s letter grade.
- No chair recorded on the registerNo chair or presiding role is recorded in the register for this board of 5. The Charities Register does not require one to be identified, so this is a gap in the public record rather than a finding about the board.
Each signal is a data-driven observation, not a judgement. They fire automatically from the figures filed with Charities Services. A charity can address any of these by filing fuller disclosure or updating its officer register. Methodology: /about/methodology/concern-signals.
$65.3K
$1.4K
$63.9K
Financial data from Charities Services annual return (FY2025). Ratings calculated using CharityData v3.1.1 methodology.
About
The purpose of the Trust is to promote the prevention or control of diseases caused by ECHS1D deficiency. ECHS1D is an under researched genetic disorder which causes early onset neurodegeneration in babies. The disease is prevalent in Maori and Pacifica people.
Who We Serve
Key Statistics
Financial Health Dashboard
Based on latest annual return data. Metrics are calculated from reported financial data and may not reflect the full picture. View methodology
Revenue Diversification
HHI (Herfindahl–Hirschman Index) measures concentration across 6 income categories. Lower HHI = more diversified. Score above 60 indicates healthy diversification.
Peer Comparison
Ranked against 215 peers · Health · Under $100K
Top Peers in Group
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Sector & Activities
Data sourced from Charities Services register and publicly available annual returns. Our datasets may not be complete. Automated analysis can produce errors. Scores are calculated using disclosed methodology and are analytical tools, not investment ratings or recommendations. If you believe any data on this page is incorrect, please contact us at hello@charitydata.co.nz. For informational purposes only. Not investment advice. Last updated: 3 October 2026.
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