Ehlers-Danlos Society New Zealand Incorporated — Health Charity in Auckland

Ehlers-Danlos Society New Zealand Incorporated is a Incorporated Society charity in the Health sector, based in Auckland, Auckland. Annual revenue: $0.0M NZD. Financial data as at March 2026.

Mission: Our mission is to improve the wellbeing of those with Ehlers-Danlos Syndromes/Hypermobility Spectrum Disorders in Aotearoa New Zealand by raising awareness, improving knowledge by health professionals and providing support to patients.

Registration Number
CC55826
Charity Type
Incorporated Society
Registration Date
2018-06-12
Status
Active
Sector
Health
Location
Auckland, Auckland
Email
Kelly@ehlers-danlos.org.nz
Data as at
March 2026

Beneficiaries: General public, People with disabilities

Financial Summary

Total Revenue
$0.0M NZD
Total Expenses
$0.0M NZD
Reserve Months
0.0 months of operating expenses
Financial Year End
2026-03-31

Financial History

YearRevenueExpensesNet Assets
2026$0.0M$0.0M-
2025$0.0M$0.0M-
2024$0.0M$0.0M$0.0M
2023$0.0M$0.0M$0.0M
2022$0.0M$0.0M$-0.0M
2021$0.0M$0.0M$0.0M
2020$0.0M$0.0M$0.0M
2019$0.0M-$0.0M

Board Members and Officers

Current Officers (4)

NameRoleAppointed
Deborah WallisCommittee Member / Treasurer2026-02-18
Grace BlackettSecretary / Committee Member2024-08-08
Sarah TeareCommittee Member2022-08-11
Kelly McQuinlanChair2018-05-01

Former Officers (17)

  • Annabell Young — Committee Member (departed 2026-04-17)
  • Nikita (Nikki) Van Dyk — Committee Member (departed 2024-08-24)
  • Jasmine Turner — Committee Member (departed 2023-04-01)
  • Wendy Fairs — Committee Member (departed 2025-08-11)
  • Peter Bourgeois — Committee Member (departed 2022-02-12)
  • Fleur Bourgeois — Committee Member (departed 2022-02-12)
  • Sharleen Bigham — Committee Member (departed 2021-10-04)
  • Tara Apperley — Treasurer/committee Member (departed 2024-10-23)
  • Jennifer Saunders — Committee Member (departed 2024-07-04)
  • Natalie Dudley — Committee Member (departed 2020-03-11)
  • Kylie Burling — Committee Member (departed 2022-09-23)
  • Alli Jackson — Committee Member (departed 2022-01-01)
  • Angela Desmarais — Committee Member (departed 2021-04-14)
  • Ben Cremer — Officer (departed 2019-07-01)
  • Pamela Buckingham — Committee Member (departed 2020-09-09)
  • Lisa Preston — Treasurer/officer (departed 2020-05-20)
  • Stephanie Aston — Secratary (departed 2019-07-15)

Similar Charities in Health

HealthIncorporated Society

Ehlers-Danlos Society New Zealand Incorporated

CC55826Auckland, AucklandRegistered 12 Jun 2018
Data updated: 3 days ago
Financials6mo agoRating3d ago

Financial data as at March 2026. Sourced from Charities Services register.

NR
Not rated — Volunteer / community organisation

Small volunteer-led organisations are not letter-graded: the standard financial template does not fit entities without paid staff, large revenue, or significant government funding. The charity's filed figures are shown above.

How ratings work →
Revenue

$2.8K

Expenses

$5.1K

Financial data from Charities Services annual return (FY2026). Ratings calculated using CharityData v3.1.1 methodology.

About

Mission

Our mission is to improve the wellbeing of those with Ehlers-Danlos Syndromes/Hypermobility Spectrum Disorders in Aotearoa New Zealand by raising awareness, improving knowledge by health professionals and providing support to patients.

Who We Serve

Beneficiaries
General publicPeople with disabilities

Key Statistics

Annual Revenue
$2.8K
Total Expenses
$5.1K
Net Assets
-

Financial Trends

Financial Trends (8 Years)

Revenue Breakdown

Expense Breakdown

API Data

Based on annual return data. Detailed program/admin breakdown not available.

Financial Health Dashboard

Cents to the Cause
62c
For every $1 spent, 62c reaches programs
Adequate
Sustainability
14mo
Could operate 14 months with zero revenue
Healthy
Fundraising Cost
$2.23
Costs $2.23 to raise each $1 in donations
High cost

Based on latest annual return data. Metrics are calculated from reported financial data and may not reflect the full picture. View methodology

Revenue Diversification

44
Score /100
Concentrated
HHI: 5,620
Other68.3%
Donations30.9%
Investment Income0.7%

HHI (Herfindahl–Hirschman Index) measures concentration across 6 income categories. Lower HHI = more diversified. Score above 60 indicates healthy diversification.

Peer Comparison

Ranked against 215 peers · Health · Under $100K

Rating Score
0
#61/216
Revenue
$3K
#181/216
Reserve Months
0.0
#1/216
Surplus
$-2K
#145/216
Staff Cost %
0%
#1/216

Peers are charities in the same sector and revenue size band. Rankings are based on the latest available data.

Rating History

NR
2026
Score: N/A
Financial: 0 | Governance: 20 | Transparency: 65
Current
NR
2025
Score: N/A
Financial: 0 | Governance: 30 | Transparency: 65

Rating

Score: /100
Financial
0
Governance
20
Transparency
65
View Full Score Breakdown

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Contact Details

Address
Auckland, Auckland

Registration

Registration NumberCC55826
Entity TypeIncorporated Society
Registered12 Jun 2018
StatusRegistered

Companies Office

StatusRegistered
Entity TypeIncorporated Society
Incorporated22 May 2018
Registered office
21a Alexander Avenue, Torbay, Auckland, 0630

Sector & Activities

Primary Sector
Health
Activities
Acts as an umbrella / resource bodyProvides advice / information / advocacyProvides services (e.g. care / counselling)

Data sourced from Charities Services register and publicly available annual returns. Our datasets may not be complete. Automated analysis can produce errors. Scores are calculated using disclosed methodology and are analytical tools, not investment ratings or recommendations. If you believe any data on this page is incorrect, please contact us at hello@charitydata.co.nz. For informational purposes only. Not investment advice. Last updated: 4 October 2026.